I was diagnosed with DCIS in 2008. That day seems like yesterday. I am trying to find some peace. I have always been very health conscious — ate only organic, supplements, and exercise, etc. — never smoked or drank alcohol.
When I received that phone call to have another mammogram on my birthday of all days, I was overwhelmed with fear, later to be followed by a core needle biopsy and then to be told I had DCIS. The nurse said I had a pre-cancer and set me up to meet with a surgeon. This surgeon, after greeting my husband and I said, “Who in your family has breast cancer?” I replied, “no one, why? I was told I have a pre-cancer.” The surgeon replied, “she should have not used that word…..you have breast cancer.” My husband and I were in shock. She then told me that I had an aggressive DCIS — high grade cribiform, necrosis type in my left breast. She said I had 3 choices: lumpectomy followed by radiation, single simple mastectomy, or bilateral mastectomy followed by immediate reconstruction. They would do a sentinel node biopsy to make certain it had not spread. Never mentioned active surveillance. She said not to wait very long for I had an aggressive form of breast cancer. She gave me the name of the plastic surgeon she works with and said I would be in good hands.
I spoke with family after a good cry as well as a family member in the medical profession and never went for a 2nd opinion. I regret this today.
I met with the plastic surgeon and decided on a bilateral tram free flap reconstruction. A few days after coming home with hanging tubes etc., the left flap failed and I had to undergo emergency surgery for debridement, etc. plus all the other reconstruction and follow up appointments.
It was so devastating and disfiguring — maybe my vanity. I regret not going for a 2nd opinion and wish I would have known of Dr. Harms, the RODEO MRI, and Dr. Lagios, who is a renown pathologist. I would have gone the holistic route.
Today, I count my blessings and thank God, for my husband family & friends. I am working on finding peace with this.
In hindsight… I wish that I had continued as a patient at “Women to Women,” a clinic for women founded by the renown Dr. Christiane Northrup. The Doctors there would have guided me when I received the terrifying diagnosis of DCIS and how to proceed, for as Dr. Christiane Northrup says in her article: “DCIS is not BREAST CANCER!”
Thank you for being there & trying to help others diagnosed with DCIS.